Sunday, December 13, 2009

Perhaps it wasn't a good idea.....

to get Jack a trampoline for his birthday. It's just a little one so I think it will be okay. We have to put it away after he's been jumping for 20 mins or so or else he'd jump 'til he passes out. Maybe he will be able to work up to more time. I hope so. The problem is we found out that Jack has a gap between his skull and his c1 vertabra, a bigger gap than the ped neuro surgeon that we saw last Thurs is comfortable with. A gap that is known as AOI - atlanto-occipital instability. A gap that could potentially have life changing impact on our little man. People have little gaps between bones - that's normal and expected. A gap the size of Jack's between my skull and c1 would be okay. In him, not okay. So we have to restrict some of his wilder activities, no football or roller coasters. No big trampolines. We have to watch his walk, check for pain in his neck, loss of strength in his grip. We'll repeat the xrays in Apr. Please pray the gap will be less. We'll think about what happens if it isn't, then. In the meantime, we watch, we wait, we pray.

(It took me a long time to write, and then post this. I know, in the grand scheme of things, this is not the worst thing ever, nor is it the end of the world. But it's been very hard for me to process. Thankfully, I have good friends (one of whom has beautiful little girls) to distract me. If anyone has any helpful links, please pass them on.)

3 comments:

RK said...

Oooh, beautiful little girls! Maybe I should meet this friend. :o)

He's gonna be great, and I have a feeling he'll be all over that trampoline like crazy for a long time to come. (in small doses so as not to wear himself out!)

No matter what, he'll have his little--sometimes annoying---best buddy, so he'll make it, and so will his mom.

Julie said...

Maybe I should have mentioned QT coffee too? Or keeping me busy when my little guy is away at school? Couldn't do it without you RK!

Mommy to those Special Ks said...

emailing you right now! Hang in there.