When Jack was first dx'd with Down syndrome, I wanted information. I searched the internet and came upon a wonderful site, Downsyn.com, that gave me lots of info but more importantly, had an amazing forum with knowledgable and friendly families of people with Ds. I looked at their pictures, I read their stories, and I came to feel we are a family. I talk about the kids and their families like they live next door. My real-life friends are probably sick of hearing about these on-line people! I've been lucky enough to meet some of these families in real life; as a matter of fact Miss Braska and her family have quickly become as important to us as our actual relatives! However, this post is not about us, or Braska and RK.
It is about a little sweet-heart named Polly. One of my new buttons (on the right) is for Polly. She is one of the faces that welcomed me to Downsyn a few years ago. I've gotten to meet her and her family. I have a really cute pic of Polly but Blogger doesn't want to let me add any pics right now. Polly's mom, Gillian, is just as beautiful on the inside as she is on the outside. They need our prayers right now because Polly has been diagnosed with Moyamoya syndrome. This is a quote from a post Gillian wrote, explaining. "The Doctor explained that it had to do with blood vessels in Polly’s brain progressively narrowing, resulting in strokes. The disease worsens with age. And the only way to combat it is brain surgery." Obviously, very scary stuff. If you click here, you can read about Polly and her family.
This post is also about a beautiful little girl named Quinn. She's younger than Jack, so I was able to welcome Quinn's mom to Downsyn after I had been there awhile. Karyn and I have talked through posts and pm's (private messages). Our (Ds) stories are similar. We both found out about our unborn babies having Ds and continuing the pregnancy. Quinn has a wonderful, loving family. Quinn has been diagnosed with IS - Infantile Spasms. Please click here to read the story. The cure seems to be as bad as the illness, but Quinn is a fighter, and I'm praying for a super outcome for her!
Both of these families have found their way into my heart, whether they want to be there or not! Please add them to your prayers, they are my family.
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3 comments:
Thank you so much Julie - you don't know how much this and all your messages mean to me. I am truly blessed to know you and Jack.
First...awwwww. I feel honored. :o)
Most importantly, these little ones DO need our prayers, so thanks for the reminder. I don't hear about Quinn except from you since I'm not at Downsyn much, and I've not kept up with her IS issues. We'll be praying for them both.
Yes, thank you Julie.
You are always so encouraging and we greatly appreciate your prayers and friendship.
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